Daily Archives: April 25, 2014
Taking my baby for a walk.
Enjoying the shadows that play across his sweet little face
As we move in and out of the trees.
A gentle breeze rustling the leaves, distant birdsong,
The calm clatter of pram wheels along the cobbled path.
Watching the curious look in his innocent eyes
As he takes in the scenery passing by.
Is there any moment more peaceful, more wonderful,
A greater advert for life?
The only way to make this memory any better
Is to share it with you.
I am Joy and I want the world to know,
what I would do if this were so.
If I lived in a world with less pain, this is what you would see.
A world filled with less struggles and strain, aching to be free.
I would be a voice that does not go unheard.
But instead be one of distinction to serve,
a community of people with better places to go
in their provision of care that exceeds “the pain world” we’ve come to know.
Pain as it is, with treatment that works.
Not pushed or stereotyped merely because we “irk”,
the professional that thinks we all are the same,
prescribing a drug that has the same name,
even if our conditions are in different range.
If I were this person this is how it would be,
you could hear my voice but you can’t see me.
Because if I was in less pain I would be free.
Free to live with less struggles and despair,
but with a greater hope to overcome obstacles I can bear.
Free to speak without feeling ashamed
of the world I now exist in with the devastation of pain.
Free to choose a doctor that will openly listen to me
and not place me in the same category.
Free to live out the goals I so desire,
without constantly feeling sick, weak, or tired.
Free to be the person I was created to be,
to live out the purpose that was pre-destined for me.
With more strength than I now have that would carry me through,
a life filled with courage and hope anew.
If I lived in a world with less pain “I” would be,
the person behind the door you cannot see.
The person longing, waiting to be free.
Free to be Joy, free to be me!
the National Fibromyalgia & Chronic Pain Association (NFMCPA), seeking to secure a Presidential proclamation naming every September National Pain Awareness Month. My family also helped create a YouTube video of the poem with my voice that was featured on APF’s Facebook page. I’ve included the link below.